On Saturday, August 9th, I had the privilege to attend the 2014 Scleroderma Patient Forum. This forum included updates from the Tri-State and Ontario Foundation chapters and two guest lecturers - Dr. Pope and Dr. Shapiro. It was a fantastic morning at the Niagara Falls Memorial Medical Center. Both doctors were incredible and fun to listen to. Sometimes when I have attended these functions in the past, the doctors are very smart, but hard to translate their message to patients and their families. Both of these doctors were excellent at relating technical information for the patients.
Seminars like this one is supported by the local Scleroderma chapters. Most of the money that is raised during the year is spent on research, but some is ear-marked for patient advocacy programs like this one. Having the Tri-State Scleroderma chapter connected with our area is such a blessing in order to spread knowledge and awareness of this disease.
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